The deets on the brain surgery & a few other things

I really wish I could say our week has started as good as our Friday evening & Saturday were.
Friday night was full of delicious date night food

Saturday Sweet Kisses
And extreme enthusiasm about a bounce house. The girl couldn't get enough. I assure you it was pure glee.

Sunday lead to snotty noses, ear infections, fevers, and today a breathing treatment and some good old deep suctioning.

Man- I am exhausted. I can do chronic illness, or acute illness, but both....I cannot do that. It has been weeks straight of Constipation, EEG hospitalization and then self and now her Illness.
Can't a girl (and her mama) get a break?!

After talking to the doctors we decided we will go ahead with the Tuber Resection. Miss Emmaus will have brain surgery at St. Louis Children's hospital on November 15.
It was not an easy decision to make but we truly are hopeful that it will change her life tremendously.

Speaking of hope. I have been a little low in the hope area lately. And truly may have crossed over to complete self pity often. But I am working on it. 

We truly are surviving based on the kindness of others right now. 
People are bringing meals, people are coming over so we can sleep for a few hours, people are watching Emmaus so Dan and I can go on a date. People are sending us sweet messages of hope, of encouragement. We are so thankful and so overwhelmed by the generosity of those around us. It is so hard to ask for or accept help, but truly we need it right now, and so many are helping. And we are humbled and thankful. 
(And Dan is extra thankful for the meals- cause I am working too much and too sleep deprived and dealing with 100 different sick baby things to plan a meal- so thankful to you meal bringers he doesn't only have to eat turkey sandwiches and cereal) 


"Therefore we do not lose heart, though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us eternal glory that far out-weighs them all. So we fix our eyes not on what is seen, but what is unseen. For what is seen is temporary, but what is unseen is eternal" 
2 Cor 4:16-18


  1. marking my calendar to be in crazy prayer mode on November 15th. proud of you and Dan for making such a big huge decision and being so brave!

  2. Love the new blog! Sorry things have been crazy but thanks for taking the time to enjoy some coffee and chat with me, it made my day! And thanks for sharing your ups and downs, you are such a blessing to so many :)


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