God is Good all the time.

First. This is my current Jam- You should give it a listen. The whole CD is great. But man- this song.

I could write all about the nitty gritty details of the happenings in this ICU room for the last several days- but instead I will just say Emmaus isn't doing well, and we covet your prayers for her, and us.
I don't know that we have ever faced such a trial. Everything about this sickness has tested and tried us. It has been harder than brain surgery, or endless seizures, developmental delays and autism. And at least for today I don't even have encouraging news. But I did just want to write out a thought real quickly.
Even through this. In crazy times like this. When every day for the last three we have gotten worse and worse new about Emmaus' health, even when she is not getting better, even as I sit in her ICU room where she lay pale, intubated, and sedated- I just want to make it clear that God is Good ALL THE TIME.
This sickness, this pain, her underlying tuberous sclerosis, this was not God's plan. These things are a result of brokenness, of sin being a part of this world. And while it is hard- really hard to live in the midst of this- God has taken care of this too. He has already sent his son, he has already paid the ultimate price to take care of this brokenness.
As her mom I have so many emotions. So many fears, and unknowns. The one things I do know I have a God Father that has not forgotten about me. He has not forgotten about Emmaus.

So- I know this is a bit preachy for my normal post. But this is what is on my heart today- so I figured I would share it.

"For God did not give us a spirit of timidity or fear, but He has given us a spirit of power and of love and of sound judgement and personal discipline abilities that result in a calm, well-balanced mind and self control"



  1. I am a mom of a 2 year old with TSC. My mom was the mother of a mentally handicapped girl, my sister. My sister was prone to developing pneumonia over the years. The second time she had it, she was dependent on the o2 machines as well and they told my mom, the time is near. So my mom stood by waiting for that moment that one night to let her go when it was clear she had crossed that line. She, my sister, went near to that moment but nope, she rebounded and fully recovered. Your family is in my thoughts and prayers for I hope she makes a full recovery.

  2. I am thankful you understand the source of illness and pain: sin. So many people blame God or themselves. Still praying for God's will and strength for you.


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