Amnesia
When I get super stressed I have amnesia. I swear. Is this common? Anyone?
We haven't had bread all week. And yet there are so many things running through my head I can't remember to write it down. I look for bread, we are out and by the time I go to write it down I am on to something else and I forget that I needed to write it down. I hate being this overwhelmed because it turns my attention span to that of a gnat and I forget everything. Its out of control .
I have been researching. So many meds, so many options, so many decisions to be made. I never in all my wildest dreams thought being an adult, a parent would be so real. So hard. That the decisions we make daily would be so huge.
And I am forced to deal with the simple fact, that as of right now- nothing- NOTHING (on earth) will cure Emmaus. Palliative- now that is a concept I despise. No cure, just treating symptoms of an illness. Praying for a breakthrough. A cure.
It has been a hard week. Lots of seizures. And a new school for Emmaus. I had no clue it would be so different from TLC and right now I am missing TLC something fierce. She immediately belonged there. And this- is different. It is big, and institutionalized, and impersonal. I need to give it more time. I'm aware. Just right now- that in itself seems like a task.
Everything does.
Praying that tomorrow I wake up clear, and focused and ready to bust it because we are celebrating our baby Shi turning one this weekend. And I have done nothing. So sad really. I love parties, and planning. And first birthdays for fat babies.
I mean- I can't remember what I need to do- so the productivity is at a minimum.
I did work out more than once this week, and ate less candy than usual. So win, win?
We haven't had bread all week. And yet there are so many things running through my head I can't remember to write it down. I look for bread, we are out and by the time I go to write it down I am on to something else and I forget that I needed to write it down. I hate being this overwhelmed because it turns my attention span to that of a gnat and I forget everything. Its out of control .
Today I actually wrote a to-do list with two things on it. And I only did one- cause I forgot to do the other. The reason the to-do list was so short was because I couldn't remember what I needed to do.... Seriously. Stress. Makes me go blank.
I was brushing my hair and stopped to do something else- and later went to put on make up just to realize I only had completed half my hair brushing task- I mean a 1 min task I can't complete because I am too distracted? Lord help me
I mean- my kids got fed, and I think I brushed their teeth? Maybe? I know I brushed mine while giving the LONGEST phone survey known to man about our last hospital admission.... I thought it was the neurologist calling or I wouldn't have answered- lets be honest. Oh- and I showered. that is a major WIN!I was brushing my hair and stopped to do something else- and later went to put on make up just to realize I only had completed half my hair brushing task- I mean a 1 min task I can't complete because I am too distracted? Lord help me
I have been researching. So many meds, so many options, so many decisions to be made. I never in all my wildest dreams thought being an adult, a parent would be so real. So hard. That the decisions we make daily would be so huge.
And I am forced to deal with the simple fact, that as of right now- nothing- NOTHING (on earth) will cure Emmaus. Palliative- now that is a concept I despise. No cure, just treating symptoms of an illness. Praying for a breakthrough. A cure.
It has been a hard week. Lots of seizures. And a new school for Emmaus. I had no clue it would be so different from TLC and right now I am missing TLC something fierce. She immediately belonged there. And this- is different. It is big, and institutionalized, and impersonal. I need to give it more time. I'm aware. Just right now- that in itself seems like a task.
Everything does.
Praying that tomorrow I wake up clear, and focused and ready to bust it because we are celebrating our baby Shi turning one this weekend. And I have done nothing. So sad really. I love parties, and planning. And first birthdays for fat babies.
I mean- I can't remember what I need to do- so the productivity is at a minimum.
I did work out more than once this week, and ate less candy than usual. So win, win?
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