Extreme Home Makeover & Sneaking little people into the hospital.
Well apparently while we have been gone the extreme home makeover people came to our house- or something like that. (Truly it was friends from CMH- but still who cares if Ty wasn't there- they are incredible & we are so beyond grateful for the kindness of others- all for the love of this little girl. It's incredible)
Today the last of our friends/family that came to St. Louis returned to KC. And it was pretty hard really. It is very exhausting being in the hospital & the support of friends & family was a great distraction. However- tonight we sit on the cusp of hope for things to come. For change in our little girl- which ultimately means a change in our lives. For the joy of celebrating 72 hours of seizures freedom. For new beginnings.
We were hoping to be coming home tonight or tomorrow, however, Emmaus' ventricular drain is still draining and it is still pink/blood tinged. So thats not going to happen. She has to have the drain out and do well for 24 hours before we could come home. Pray for straw colored drainage and them clamping the drain FIRST THING tomorrow morning. So maybe we can be heading back to KC by tuesday afternoon?! Maybe.
Today the last of our friends/family that came to St. Louis returned to KC. And it was pretty hard really. It is very exhausting being in the hospital & the support of friends & family was a great distraction. However- tonight we sit on the cusp of hope for things to come. For change in our little girl- which ultimately means a change in our lives. For the joy of celebrating 72 hours of seizures freedom. For new beginnings.
We were hoping to be coming home tonight or tomorrow, however, Emmaus' ventricular drain is still draining and it is still pink/blood tinged. So thats not going to happen. She has to have the drain out and do well for 24 hours before we could come home. Pray for straw colored drainage and them clamping the drain FIRST THING tomorrow morning. So maybe we can be heading back to KC by tuesday afternoon?! Maybe.
Today we snuck this little cutie into the hospital to see her friend.
They kinda like each other a lot.
Our day has been filled with lots of playing, reading (this kids LOVES to read) and then a little bit of a dance party.
We are thrilled to have a happy playful girl back!
Makes me want to road trip it there to love on you guys!! So awesome about your house! Lots of love your way....and praying for rest tonight for all as well as straw colored drain! Home sweet home come soon!!
ReplyDeleteThat is so awesome to see her up, smiling, and engaging with you and her friend. Best wishes for your return tomorrow!
ReplyDeleteshe is painfully cute.
ReplyDeleteKeeping my fingers crossed that all stays well and you guys can get back home soon! Your little girl is adorable!!
ReplyDeletelove that little tongue sticking out
ReplyDelete