a year since TS

I realized this weekend that it has been a whole year since we have known about Emmaus having TSC. It has been a year full of immense challenge and incredible joy. I never imagined that our life would look like this, that it would have the type of challenge caused by raising a daughter with a chronic illness. But I also never knew the great joy that comes with a special needs child. Or the huge victory we feel when she learns to do new things.
 I do wish I could go back to the day before we found out and just sit in the bliss of "life before" for a moment.
To this day. And this moment.

I have learned to ask for help this year. To rely on community, to slow down and enjoy the small things. To choose joy. Its been hard. But very worth it.


  1. I've often thought, as I have prayed for Emmaus' healing, that I've heard a small voice in the back of my mind saying, "Why? Why would you ask me to take away this unique joy that a special needs child brings? Why would you ask me to deprive them of this beautiful gift?"

    I don't know if that's the Lord or not and I don't know why. So I feel like I'm praying concurrent prayers - for complete and utter healing and with that the restoration of all the hopes and dreams and beauty of a normal life -- and if not, for the peace and acceptance of perhaps a greater gift has been given.

    I hope that's helpful. :) We love you all so much!

  2. I LOVE this picture and am so inspired by your transparency and strength. What a beautiful woman you are!


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