everything I need

Today I'm not really understanding why this is the road we are walking. Why this is the burden we have been given to bare.
Little one is having lots of seizures today. We increase the vigabatrin dose tonight. Hoping it stops the seizure activity again.

Jesus have mercy on this sweet little face.

When every step is so hard to take and all of my hope is fading away. When life is a mountain that I cannot climb. You carry me. Jesus carry me.
You are strength in my weakness, you are the refuge I seek. You are everything in my time of need. You are everything I need.
Love, La


  1. not much more to say than praying over Em and you all.

  2. Praying that the Lord provides refuge for you all from the storms of this life... May His love comfort you and hold you.

  3. Oh how discouraging! I'm thinking again of that Sara Groves song and praying that it is the anthem of your hearts today:

    I can’t remember a trial or a pain
    He did not recycle to bring me gain
    I can’t remember one single regret
    In serving God only, and trusting His hand
    All I have need of, His hand will provide
    He’s always been faithful to me.

    This is my anthem, this is my song
    The theme of the stories I’ve heard for so long
    God has been faithful, He will be again
    His loving compassion, it knows no end
    All I have need of, His hand will provide
    He’s always been faithful, He’s always been faithful
    He’s always been faithful to me.

    God has been faithful, He will be again. Love you!

  4. Oh, Laurisa! I hope that Emmaus has improved since yesterday...and you all were able to get a good night's rest last night. Praying for you all, thinking of you.

    Jesus...gather this sweet family close to you. Give them relief from their suffering! Amen...


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